On August 20, 2011 -- Glen Steen was in an unfortunate cycling accident which required immediate spinal cord surgery and has left him in a quadriplegic state. Glen is a warrior and because of his determined nature and dedication to therapy, he is making gains each day. Follow Glen on his journey here in his Blog, written in his own words.


Friday, 18 May 2012

The Rest of the Knee Story


The Rest of the Knee Story

As you know I had my knee replaced.  For the two weeks prior to the surgery I was a little apprehensive and quite frankly scared to have the surgery but I had been yapping so much about it there was no way I could turn it down because this was my last chance.  Fortunately the surgery was scheduled for 1:30 on May 2nd which gave us lots of time to get to the hospital by 11:30 for all the pre-op stuff.  The night before the surgery I had to have a shower using an antibiotic sponge and on the morning of the surgery I had to use an antibiotic sponge on my left leg.  What I remember now is being wheeled into the operating room and seeing all the tools they were going to use on my knee.  The resident physician was getting me prepared and I had my spinal and they held up my leg and I asked them whose leg that was because I felt absolutely nothing….”good thing.” 

It seems I slept through most of the surgery and the only thing I remember is waking up near the end and hearing them hammering on my knee.  It sounded like they were taking a hammer and using a punch to hammer something into my leg, which they probably were.  According to the resident I hadn’t done any talking during the whole procedure….”another good thing.”  I was out of post-op recovery by about 5 o’clock and the surgeon told Darcy that the surgery went very well and he took a little extra time to clean up some of the stuff that was in there.  Darcy was so happy, she gave the surgeon a big hug much to his surprise.  He came and saw me in my room on Wednesday night and explained that the surgery had gone very well. You could not ask for a better surgeon.

I had a roommate on Thursday who was a professional baseball player in the late 60’s and early 70’s.  For those of you who are baseball fans his name was Mike Kilkenny and he pitched for the Detroit Tigers in the late 60’s and at the time of Denny McLean, while McLean was making millions, Mike was very happy to get paid $6,000 a year.  He was a starting pitcher with Detroit and then went to Oakland, San Francisco and finished off his career in Cleveland after spending 15 years in the majors. He and Ferguson Jenkins were the only two Canadians in the league.  He said Cleveland at the time was a place where you knew the fans by name.  The reason I am talking about my roommate is because, it was a little upsetting, that he had his surgery on Thursday, was walking on Friday and went home on Saturday.  Meanwhile I had to stay until Monday.  The same surgeon did both our knees and he came in again and explained to Mike how his surgery went and then to me and that is when I found out that he took extra time doing my knee.  He says he usually does a knee in an hour plus or minus a few minutes but he said mine was such a mess he took an extra ½ hour to fix it up.  He said there was lots of old injury stuff, arthritis, etc., and there was a lot of recent injury from the crash. An interesting thing is he told me that when he was finished he could straighten my leg out to under 5 degrees which he never expected considering the condition of the knee……….yeehaw!!!!

Rehab in the hospital was interesting to say the least.  Thursday wasn’t bad because, I still had some of the effects of the hydromorphone that they used in the epidural, and the physios bent my leg to approximately 55-60 degrees without too much pain. For the rest of the weekend, Saturday, Sunday and Monday physios came in twice a day to torture me and once to put ice on my knee.  They eventually got it to bend to 70-75 degrees but in doing that there was a lot of whining and crying and all I can say is “Yikes, it hurt.”  It’s a good thing they told me after the surgery that knee replacement was one of the most painful operations that is done.  If I had known that there would have been a little more apprehension prior to the event.

I knew there was going to be pain and I thought I could handle pain very well and I wasn’t using my pain meds correctly because I thought I was a tough guy.  I would wait until my knee was hurting and then take the pain medication to try and catch up.  The reason being I was afraid of being addicted to hydromorphone.  I have since learned to use the medication prior to any activity to stay ahead of the pain.  I take a long lasting hydromorphone of 9 mg in the morning and 6 in the evening and I have 2 mg of breakthrough which means if I have pain I can take 2 mg every two hours and my pain has decreased.

I started occupational therapy and physio on May 7that Parkwood and they arranged it to have OT and PT on Mondays and Wednesdays at 10 and  11 which saves me a couple of trips to London a week.  I assumed that in OT they would be working on my left arm and in PT they would be looking at my left leg.  Given the pain that I had when moving my knee I was almost petrified to go to PT, instead of taking 2 mg every two hours, I took 2 mg every hour prior to the therapy.  When I got to PT, the physio had told me that she had spoken to the OT therapist and they had agreed since they were both using the same protocol on my arm, that the physio would also do my arm until my knee healed and they were able to work on that…..whew…..  Physio was also taking some time to get me to transfer from my wheelchair to a table unassisted.  Haven’t quite reached that point yet as I need more leg strength in both my right and left legs and I’m working on it. With OT and PT doing my arm the Physio from CCAC is working on my leg. Under their licensing two physios cannot work on the same patient on the same body part at the same time. Note: above one is a physiotherapist and one is an occupational therapist.

Here’s just some ramblings about what’s been happening at home.  Had a couple of bouts of constipation and I guess I have described that enough that you know what it’s about.  My pharmacist recommended an over the counter laxative called RestoraLAX.  It acts by absorbing water from your blood stream and putting it into your intestine thus eliminating constipation.  It is a natural product and you take it as much as you want, however if you take too much, it may go from hard to too soft very quickly. The natural ingredient is polyethylene glycol which sounds like plastic or antifreeze to me.  I take ½ teaspoon with my breakfast and it seems to do okay.  Of course I am still taking my other laxatives, Milk of Magnesia, Senekot and Soflax.  You get the picture.

The knee created some problems at home as I was in ‘pain’ when anybody even thought about moving my knee.  Note this was before I learned how to use my medication.  The PSWs who came in to shower and do bowel care became almost afraid to touch me as I can yell quite loudly. We made arrangements with the agency to send two PSWs, one to hold my leg and one to move me.  I was having trouble moving and sitting up in bed because I had so much muscle tone (spasms).  We looked at my medications and the resident physician had decreased my Baclofen (antispasmodic) after the surgery from 50 mg daily to 15 mg daily.  I couldn’t sit up and when I moved my legs my arms would spasm and tighten up and I had difficulty moving anything.  After some time and a doctors’ visit I got my Baclofen increased to 60 mg daily and I am able to sit up and move much better…….jeeez who would have thought that one drug would have that much of an affect.

Now back to the two PSWs at every visit…….after taking the Baclofen and being able to take my pain meds correctly, I could sit up by myself and move my leg around very easily. One worker does most of the work and the other assists or does other things around the house like making my bed etc. I felt  embarrassed having two people and the money that is being wasted on me but I was told that it is a safety issue and the cost to repair me  after a fall far outweighs the cost of a PSW, that’s the system I guess.

Darcy was having problems moving me around.  When I get in and out of bed she has to lift my legs in and this is more weight she can handle.  And when there was one PSW, Darcy would assist in getting me to sit up which meant she would have to assist lifting my body weight of 170 lbs or help moving my leg and she got very upset when I would say, very loudly, well ok, yell ‘NO…NO…NO…NO…PLEASE...STOP’ and I was not even on the commode yet.  Needless to say, Darcy was at her breaking point and on Wednesday, May 9th, she was having some problems and I asked her to check her blood pressure which is usually around 118/84; this time it was 173/104.  She was afraid she was having a heart attack or stroke because she was having pains in her chest on the left side and her fingers were feeling numb and tingly.  She was also afraid of what would to me if she was not here. We called a friend who came over immediately and took her to the hospital and his wife came over to look after me.  To complicate matters I was very constipated at the time and while removing the stool my hemorrhoid started to bleed. This frightened me a little bit because I am on blood thinners.  More friends came over and one went and bought some Depends as we didn’t know if I would be bleeding through the night or not.  A friend who is a nurse came over and checked my Depends before I went to sleep and there was no blood….worry ended.  Now the problem was Darcy was in the hospital and I needed another friend to sleep over night and she slept on the sofa.
Darcy was released from the hospital in the morning her pain in the chest was gone, her BP was down and the ECG was good and the blood work showed nothing. Since she has been home, we have tried to limit her lifting. Having 2 PSWs coming twice a day helps alleviate some of that. One reason for a lot of lifting was that I was told that I should not keep my leg in the same position for more than an hour. I was in and out of my chair several times a day which meant that Darcy had to lift my legs and spin me into bed several times a day which contributed to her back pain and stress. 

My knee is getting better and now it bends almost 90 degrees without any pain and it seems to have happened overnight.  On Tuesday I was at a friend’s place and my knee was bending 60-70 degrees and I couldn’t get my foot on the foot plate of the wheelchair….today, Thursday it bends almost 90 degrees and I can put almost half my foot on the foot plate…hmmmm…good progress.

In physio on Wednesday, I had acupuncture in my left leg for an additional 20 minutes.  Acupuncture takes some time to have an affect, I’m just hoping it’s a good one as I had when I was in the hospital. The other good news is I tried to ride my bicycle today but I didn’t have the courage to spin the pedal all the way around due to anticipated pain.  I spent about 20 minutes doing half pedal strokes without turning the pedals all the way around…a workout nonetheless.  After my pedaling session Darcy suggested that I put my both feet on the ground to see if my left foot would sit flat on the ground……it did. I tried to do some standup launches which means I hang onto the handlebar with one hand and try to get my butt off the saddle.  I tried several little launches which I got my butt off the saddle about two inches and then I tried the big one and I almost stood up……..yeehaw.  I tried several more and it felt really good, however I really needed my right arm in pulling and holding myself up.  I couldn’t do it without my right arm. I will be doing it many times in the future hopefully after half an hour of proper cycling.

As mentioned the lack of Baclofen causes a lot of spasms plus the sore knee didn’t’ help either and last Saturday, May 12th I was on 15mg of Baclofen and was very stiff and sore. I could not move very well and was very disappointed in myself that I missed my Karate Club’s Shai-club tournament – after the club has been sooooooooooooo supportive of me. However some friends came over and got me out of bed at about 2 and took me for a coffee.

Wow, if you’ve read this far, thanks for listening.

Saturday, 12 May 2012

I Did It.


FYI 

I haven’t been writing as my meds got changed and I’m stiff and it is hard to type. Here’s the short version. Had knee surgery on May 2nd and all went well. The surgeon said the knee was a mess but he took some extra time to clean it up. I have been home since Monday May 7th

How am I feeling….the knee is sore and I am a big suck when it comes to the pain of bending it.
I am going to start physio and OT as an out patient on Monday.

Longer version to follow…..

Thanks for listening.

Saturday, 21 April 2012

Good News


Good News
The good news is that my knee is being done on May 2nd…..I am ready this time both mentally and physically.  I saw the surgeon on Tuesday, April 10th and he said it would 5-6 weeks before I was scheduled and then I got the phone call that it was May 2nd and they will call me on Tuesday, May 1st to tell me what time I have to be at the hospital.

The other good news is that I’m going to Occupational Therapy twice a week. Scheduling gets a little tricky, now that I have the surgery scheduled, I understand that after surgery I’m going back to Parkwood for rehab. So now I am an outpatient seeing the outpatient OT and after surgery I will be an inpatient and will be seeing the inpatient physios and OT’s……I think! 

On Tuesday, April 24th I am going back to Toronto Western to see the surgeon.  First time I have seen him since he told me to take my neck brace off in October.

It is a little bit frustrating for me sitting in the bug while Darcy struggles to get the wheelchair in the bug and hmmmmmm, I didn’t know she had such a ‘potty mouth’.  To fix that we have traded the truck……sob, sob…..for a boring white Toyota Matrix.  Darcy has put the wheelchair in the Matrix and it is much easier for her to do it.WHITE…….hmmmmmm

Whew….people ask me what I do all day long. I am busy from the time I get up ‘til I go to bed.  I have a shower every morning at 8 am….probably too much information but I am telling you anyway.  For example, this week Monday I went to have my INR checked at the hospital and then to the optometrist for new glasses.  You have to remember that it takes about 20 minutes to get me and the wheelchair into the car and another 20 to get out.  So on Monday, for those two appointments there’s about an hour and a half loading and unloading me and the chair.  The last unloading is waaaaaaaay slower than the first loading.  Tuesday I had an appointment at Parkwood with Occupational Therapy at 1 pm for an assessment to get into the out-patient program but as mentioned previously, I am going to be an in-patient in a week and a half.  

Wednesday I had a doctor’s appointment.  Thursday I went to OT at Parkwood again for an appointment I didn’t have….we were a week early and then to University Hospital to pick up the disinfecting sponges that I must use in the shower the night before surgery and on my left leg the day of the surgery.  Friday (today) Grandpa and the Sarge(see picture below) came over at 10 to stand me up and the physiotherapist came at 11 and worked my knee.  It’s moving quite well she says.

Sarge, me, Grandpa

The recumbent has arrived and Grandpa and the Sarge put it together for me which was very interesting with me watching but it’s good that Bob wanted to read the instructions while the Sarge did the work.  The big question was whether I could get on or off the bike from my wheelchair.  We tried it once and it was very simple using my slider board from the wheelchair to the bike.  We had to adjust the seat to get the right distance from the pedals but there was a problem.  The cranks on the recumbent were too long, they are 165 mm and bent even my good knee too far so there was no way the bad knee was going to be able to pedal.  I had an exerciser that had short 100 mm cranks and a friend came over and put the 100 mm cranks on the recumbent.  The next day I got on the bike and pedaled for half an hour and rode 5.9 k, burned 65 calories, an average cadence of 42, and an average of 18 watts.  So the machine does give me lots of data that I can play with……..yeehaw. So far I have 14.2 k on the bike.The plan is to ride at least a half an hour a day and start building my left leg up as much as possible before the surgery on May 2nd.  It won’t be a lot but every little bit helps.
My new bike

I am still getting counseling and a psychiatrist and a psychologist were here to talk to me last Tuesday.  That was great timing because I saw the surgeon in the morning and the psychologist and the psychiatrist in the afternoon so I was able to tell them that I was going to have knee surgery which was an issue for me in the past.

More good news, the psychiatrist lowered some of my medications from 12.5 mg to 10 mg for 30 days and then it goes to 7.5 and then to 5 and then very slowly down to zero which means that it may take up to 6 months to completely get off this one medication.  I hope the others are a little faster.

My next blog will be telling you about the knee surgery and how it went.  What I know now is that I will be going back to Parkwood for rehab.  I know the staples stay in for 12 days.   I don’t know how much rehab I will be doing with the staples still in.   We shall see…….

Thanks for listening.

Monday, 2 April 2012

Being Home


March 23 to April 1st

Being home has a whole set of new challenges. The care from CCAC and from the Red Cross who provide the service has been excellent. The issue of catheter changing has become a non-issue. Darcy changes the catheter and the Supervisor will train the PSW’s individually. I do understand the policy that a PSW is only licensed to do certain tasks and must be trained by a nurse on each patient. The PSW’s in the hospital do a lot less than the Red Cross PSW’s as it is probably a union issue rather than a licensing/liability issue in my opinion.

The challenges of being at home can be more frustrating than the challenges in the hospital. When there was a health issue in  the hospital it would be dealt with almost immediately as a nurse was a call bell away and a doctor was at most a day or two away. Here a nurse is at least a day or two away and a doctor is weeks away, of course there is always telehelp andemerge which could be hours waiting.

Here’s another share everything story. If you don’t want to read about BM’s etc. skip this paragraph.... Constipation has become a bit of a problem and bad enough that I couldn’t have a BM last Sunday night and Darcy had to use her finger to dig some stool out. Then I made a big mistake and read on the Internet constipation vs. impaction and lazy bowel syndrome in people on laxatives and pain meds. Sunday night Darcy called the Telehelp to get some information. Now there was a lot to worry about, with info from Telehelp and the Internet I was sure that I’d need surgery to remove the blockage. All day Monday I was anxious and grumpy thinking about impaction and the side effects and treatments. What a relief on Monday when everything came out all right and Tuesday night was even better.

I called a friend that I met at Parkwood who broke his back when his quad flipped over backwards and landed on top of him. When I heard his problems mine seemed to fade away. He has to insert a catheter about every 4 hours. I am fortunate in that my bladder functions and I have a minute or two warning and I can stop and start the flow. My bladder is just lazy and I have to retrain it and if and that is IF I pay attention I can make it to the washroom in time. I wear a leg bag when I go out but around the house I use a urinal. I’ve had a couple, well a few accidents and the washing machine is getting a workout. My friend is also having bowel issues and we never imagined that the focus of our lives with a spinal cord injury would be BM’s and urinating.

Hopefully my lazy bowel will be trained easily when I get off the pain meds. I have reduced my pain meds from 15 mg to 9 mg and hope to be completely off in the next 3 to 4 weeks. Once off I’ll start working on the laxative, bowel irritants, stool softeners and suppositories. Better get some medical advice on that as they say, “He who is his own physician has a fool for a patient!”

How am I feeling? Well….it’s still great to be home! I think Darcy is much better looking after me here rather than driving back and forth to London.She does need time away and friends are giving her a break. I am going out for coffee at least twice a week. Oops this supposed to be how I feel? I get a little frustrated because I think about things to do then, realize there is no way to do it. I am still seeing the psychologist at Parkwood every couple of weeks. Another frustration is my physiotherapy as I won’t be getting in for another 2 to 3 weeks. I wonder how much I am losing doing my own weight program. A physio does comes once a week for an hour and works my left arm and left leg. It’s good but not enough. As far as pain goes the muscle spasms in my ribs are my biggest problem and the tone and spasms in the rest of my body are exacerbated by the BM and urinating or lack of.  I really need to lay on my stomach but I don’t have a face pillow. My hips and lower back are getting very tight as they are at 90 degrees most of the time and I need more stretching than I can do here. I have ordered a face pillow and it should be here soon and then my buddies will be able to flip me over on the living room carpet. I ordered a recumbent stationary trainer which will be here on April 11th. My friends come and stand me up and I was standing for 3, 4 and 5 minutes last week.

I attended a dinner party on Saturday night and missed the 8:00 o’clock bowel care. It was very interesting being at a party with friends. Normally at a party I’d have a couple, ok a few, glasses of wine and mingle. In a wheelchair it was impossible to mingle and they had to come and talk. The party was great and I enjoyed it thoroughly…...even without a glass or two of cab.

Thanks for listening…..

Friday, 16 March 2012

Inch by Inch, Life’s a Sinch, Yard by Yard, Life is hard!


Thursday March 8/12 it was home at last! Spent my first night at home in 7 months although it was in a hospital bed in the family room…it was at home. Leaving the hospital was relatively uneventful. Got into the car with no major problems but the ol’ butt was a little sore by the time I got home….an hour ride. 

I asked the nurses to sign my long slider board, the one I use to get into the car, and one wrote: Inch by Inch, Life’s a Sinch, Yard by Yard, Life is hard! I think that will become my mantra.

Friday evening the pharmacist came and explained all the drugs I was taking and how warfarin works and why I had to have my INR checked weekly.

 Today and last  Monday I went for a coffee with the guys at McD’s and that went very well. 

 I had a Dr’s appointment to get my INR checked to determine if I am taking enough warfarin. To get me in the car Darcy has to take the manual chair apart to get it in the trunk and put it back together at the end of the trip. Again we should have had a video camera. It was raining on Monday afternoon and I got loaded in the Bug and Darcy loaded the chair in the trunk. We drove around looking for any parking space as no handicapped spaces were available. We found one but soon realized there was a barrier, the curb. I wouldn’t be able slide out of the car because the curb was too high. We then found a handicapped space at the nursing home across the street and Darcy got the chair out and assembled it only to discover we had left the seat cushion in the garage. Darcy loaded the chair into the car then back to the house to get the cushion. Back to the Dr’s office, get the chair out of the car and it started to pour. I was wet and freezing so we decided to pack the chair and go downtown. The rain stopped so it was back to the Dr’s to unload the chair once again. The trip that should have been 2 unloads and 2 loads, became 4 of each and Darcy was soaking wet to boot. Note: the chair is at the limit that Darcy can lift and she was exhausted after the excursion.

The assistance has started and a PSW comes twice a day, in the morning for an hour for a shower and in the evening for bowel care. A nurse comes about twice a week, an occupation therapist has been here twice and a visit from the physiotherapist who went over my program. I know I have to be a little flexible with the schedul but I would really like to start at 7 in the morning but I know that may not be possible. The night visit has to be around 8:30 as that is the schedule my bowels are on…..Probably too much info.

It is my understanding that the agency, which will remain nameless, has a policy that all PSW’s have to be trained on each patient, to date they have been unable to do anything. Don’t get me wrong, the PSW’s have been great… it is the agency policy that is the problem. They want Darcy to train them how to put on a condom catheter when she only learned through necessity. They want me to lay there with several PSW’s standing around the bed watching as Darcy puts on the condom.  I hung my dignity on the door a long time ago but I’m afraid that is just too much. It still is a lot of work for Darcy since the PSW’ can’t even put on my compression stockings without training even though they put them on other patients regularly.

Just got a call from the agency, they have changed their plan. The PSW’s will be here at noon and Darcy will show them individually how to ‘attach’ a condom and we have to supply the condoms at $2.50 each. Remember a condom catheter is glued on with a very sticky adhesive so it won’t come off. It is bad enough having them ‘torn’ off once every 12 to 24 hours but 4 or 5 in an hour is unacceptable. I assumed that all PSW’s were trained professionals and would be trained in all aspects of the care they provide. I may be messing up my care but how can they expect my wife to train a healthcare professional any of their tasks. I understand that they may not be licensed to put on condoms but there has to be as better way to train them ‘cause it ain’t gonna happen this way. Hmmmmm…..is this directing my own care.

You will have to wait until the next blog to hear the rest of the condom story as they are coming tomorrow at noon…..how’s that for drama.

Being home is fantastic. The scary part is I was starting to consider Parkwood as home as I felt safe and comfortable there and was actually a little apprehensive about coming home. I am now glad they gave me the ultimatum of March 8 to go home or into the Tillsonburg hospital. The only thing I really miss is the 3 hour+ of therapy 5 days a week. I also miss kibitzing with the nurses, PSW’s and other patients. The staff at Parkwood are great.
How do I feel? As Tony would say I feel GRRRRREAT. I assume it is the meds that are keeping from getting too up or too down although I have not had any ‘downs’ since I’ve been home.

 I've gone for a couple of long chair rides... the dog hasn’t had such long walks in 7 months. Went about 3k with the Sarge today, he was on his bike. It was just good to be out.

Thanks for listening….

Monday, 5 March 2012

Last Words From Parkwood


Thought I’d write this blog as the last one from Parkwood. I know Meghan said the next blog will be written in the living room….well…the next one will be.Can’t say enough good things about this place. Here’s the last blog from Parkwood.

On Feb 28 I was  awake at 6:30 and had breakfast and was washed and dressed by 8:00 and arrived at the University Hospital for a  9 o’clock appointment. Saw the Surgeon who was/is going to do my knee when we think I am ready. He is going to see me every 6 weeks until I am ready. That is a huge load off my mind which hasn’t been working all that well for a while. I can now work on getting the leg stronger as soon as the calf is healed.

On Saturday Darcy, my wife picked me up in the VW Bug and took me home for 6 hours. A nurse helped getting me in the car and a friend helped get me out. A problem is the arms on the chair are hard to get out and Darcy has difficulty getting them out. I can slide into and out of the car but the hard part for Darcy is taking apart and putting the wheelchair together. The ride home was ok but my butt was getting a little sore as there isn’t much muscle left. THE fun part was getting out of the car at Parkwood. We had the sliding board in and I was sliding to the chair and we had left the arm on the chair. Slide back into the car and watch Darcystruggle to get the arm off the chair. I am always in such a hurray that I always forget to take my seat belt off.

Just reminiscing about my stay here, arrived on Sept. 14 and it will be 6 months in another  week. I was a big pain in the butt with all the little quirks and some big ones.Here are some of the quirks I had: eye drops had to be put in on the tip a piece of tissue, took my pills one at a time, wouldn’t blow my nose had to clean my nose with a q-tip, had to have someone feed me Ensure and a cookie at 10:30 every night, in the shower couldn’t have water in my ears, had to use the big black commode, my fingers were so sensitive I thought my wife was cutting off the ends of my fingers when she trimmed my nails,  felt every wrinkle in the sheets and I protected my knee and would react if anyone  went near it and I’d react to every move around me even if it didn’t hurt and in PT and OT I’d tense up before they would move me and the list goes on and on. I’m relatively easy to look after now, I think, as I can slide on the commode, use the washroom and do 90 % of the shower. I still need help dressing and some other personal stuff. When I look up I see the lift that took 2 nurses to lift me out of bed and into the chair or commode. Can’t remember the last time I used it. The good things that have happened other than the rehab is that I am pretty sure the claustrophobia is gone, don’t know 100% but very close, found out I have sleep apnea and my depression is being treated. When I got into the hospital I hung my dignity on the door and I should get some of it back when I go home. I really do not know what is going to happen when I get home. I’ll keep you posted.

Feb. 20 was 6 months from the crash and they say that at 6 months the body has repaired itself and you plateau and the changes are much slower after that. Here’s what I have: right arm and hand work at about 80%, the index finger and thumb on the left hand move but they are not strong, middle finger, ring finger and baby only move a little, the left wrist is turned in and it moves very little on its own but will straighten out with some help, the arm bends at the elbow and moves to the shoulder but won’t straighten out on its own. The left tricept is too weak to straighten the arm.I have a lot of muscle tone in both arms. The flexor muscles in the left arm keep the fingers clenched and the extender muscles are too weak to open my left hand. The brachialplexis is a big nerve group in the shoulder that runs the shoulder and it was damaged in the crash so the left arm is behind the right. There is also lot of muscle tone in my back and runs in a band round my abdomen from my belly button to my Chest. The band tightens when I move. It is very tight in the morning and sometimes prevents me from sitting up.

Both legs work but the left is a long way behind the right. As mentioned the left knee won’t straighten out but will bend to 110 degrees plus. I need a CPM – constant perpetual motion machine that moves my leg from 10 degrees extension to 110 degrees flexion. If anyone has a spare CPM laying around, let me know!My left foot has drop foot which means that I can’t pull my toes up. Before I tore the calf muscle I could lift it past 90 degrees but now even with a splint on it won’t come up.

As with any plateau, it takes a lot of hard work to get off of it. Now that I will be at home withno PT or OT I will have to do my own program for my right arm and legs. I will be on a waiting list for outpatient PT and OT which may take 2 to 3 weeks to get in. Just have to remember, a lot of hard work for small gains. The physio from CCAC will hopefully train the homecare worker to stretch and massage my left arm and shoulder to keep it moving.

Thanks for listening…….

Saturday, 3 March 2012

Heading Home

Dad asked me to pass on some good awesome news... he is going home.  


Dad is going to be discharged this Thursday, March 8th.  He is very much looking forward to coming home...so, look for his next blog to be written from his own living room once he is settled.


Dad did also ask me to pass on, that he would like a week or so to get settled at home before he is ready for visitors, there is going to be a bit of a learning curve for both mom and dad as they adjust to life at home.


Yaaaay Dad is coming home!!!  :o)


      Picture from a cute etsy shop: Pennywishes that sells art prints and eco-friendly cards.


Can't wait to see you at home dad!