On August 20, 2011 -- Glen Steen was in an unfortunate cycling accident which required immediate spinal cord surgery and has left him in a quadriplegic state. Glen is a warrior and because of his determined nature and dedication to therapy, he is making gains each day. Follow Glen on his journey here in his Blog, written in his own words.


Friday 18 May 2012

The Rest of the Knee Story


The Rest of the Knee Story

As you know I had my knee replaced.  For the two weeks prior to the surgery I was a little apprehensive and quite frankly scared to have the surgery but I had been yapping so much about it there was no way I could turn it down because this was my last chance.  Fortunately the surgery was scheduled for 1:30 on May 2nd which gave us lots of time to get to the hospital by 11:30 for all the pre-op stuff.  The night before the surgery I had to have a shower using an antibiotic sponge and on the morning of the surgery I had to use an antibiotic sponge on my left leg.  What I remember now is being wheeled into the operating room and seeing all the tools they were going to use on my knee.  The resident physician was getting me prepared and I had my spinal and they held up my leg and I asked them whose leg that was because I felt absolutely nothing….”good thing.” 

It seems I slept through most of the surgery and the only thing I remember is waking up near the end and hearing them hammering on my knee.  It sounded like they were taking a hammer and using a punch to hammer something into my leg, which they probably were.  According to the resident I hadn’t done any talking during the whole procedure….”another good thing.”  I was out of post-op recovery by about 5 o’clock and the surgeon told Darcy that the surgery went very well and he took a little extra time to clean up some of the stuff that was in there.  Darcy was so happy, she gave the surgeon a big hug much to his surprise.  He came and saw me in my room on Wednesday night and explained that the surgery had gone very well. You could not ask for a better surgeon.

I had a roommate on Thursday who was a professional baseball player in the late 60’s and early 70’s.  For those of you who are baseball fans his name was Mike Kilkenny and he pitched for the Detroit Tigers in the late 60’s and at the time of Denny McLean, while McLean was making millions, Mike was very happy to get paid $6,000 a year.  He was a starting pitcher with Detroit and then went to Oakland, San Francisco and finished off his career in Cleveland after spending 15 years in the majors. He and Ferguson Jenkins were the only two Canadians in the league.  He said Cleveland at the time was a place where you knew the fans by name.  The reason I am talking about my roommate is because, it was a little upsetting, that he had his surgery on Thursday, was walking on Friday and went home on Saturday.  Meanwhile I had to stay until Monday.  The same surgeon did both our knees and he came in again and explained to Mike how his surgery went and then to me and that is when I found out that he took extra time doing my knee.  He says he usually does a knee in an hour plus or minus a few minutes but he said mine was such a mess he took an extra ½ hour to fix it up.  He said there was lots of old injury stuff, arthritis, etc., and there was a lot of recent injury from the crash. An interesting thing is he told me that when he was finished he could straighten my leg out to under 5 degrees which he never expected considering the condition of the knee……….yeehaw!!!!

Rehab in the hospital was interesting to say the least.  Thursday wasn’t bad because, I still had some of the effects of the hydromorphone that they used in the epidural, and the physios bent my leg to approximately 55-60 degrees without too much pain. For the rest of the weekend, Saturday, Sunday and Monday physios came in twice a day to torture me and once to put ice on my knee.  They eventually got it to bend to 70-75 degrees but in doing that there was a lot of whining and crying and all I can say is “Yikes, it hurt.”  It’s a good thing they told me after the surgery that knee replacement was one of the most painful operations that is done.  If I had known that there would have been a little more apprehension prior to the event.

I knew there was going to be pain and I thought I could handle pain very well and I wasn’t using my pain meds correctly because I thought I was a tough guy.  I would wait until my knee was hurting and then take the pain medication to try and catch up.  The reason being I was afraid of being addicted to hydromorphone.  I have since learned to use the medication prior to any activity to stay ahead of the pain.  I take a long lasting hydromorphone of 9 mg in the morning and 6 in the evening and I have 2 mg of breakthrough which means if I have pain I can take 2 mg every two hours and my pain has decreased.

I started occupational therapy and physio on May 7that Parkwood and they arranged it to have OT and PT on Mondays and Wednesdays at 10 and  11 which saves me a couple of trips to London a week.  I assumed that in OT they would be working on my left arm and in PT they would be looking at my left leg.  Given the pain that I had when moving my knee I was almost petrified to go to PT, instead of taking 2 mg every two hours, I took 2 mg every hour prior to the therapy.  When I got to PT, the physio had told me that she had spoken to the OT therapist and they had agreed since they were both using the same protocol on my arm, that the physio would also do my arm until my knee healed and they were able to work on that…..whew…..  Physio was also taking some time to get me to transfer from my wheelchair to a table unassisted.  Haven’t quite reached that point yet as I need more leg strength in both my right and left legs and I’m working on it. With OT and PT doing my arm the Physio from CCAC is working on my leg. Under their licensing two physios cannot work on the same patient on the same body part at the same time. Note: above one is a physiotherapist and one is an occupational therapist.

Here’s just some ramblings about what’s been happening at home.  Had a couple of bouts of constipation and I guess I have described that enough that you know what it’s about.  My pharmacist recommended an over the counter laxative called RestoraLAX.  It acts by absorbing water from your blood stream and putting it into your intestine thus eliminating constipation.  It is a natural product and you take it as much as you want, however if you take too much, it may go from hard to too soft very quickly. The natural ingredient is polyethylene glycol which sounds like plastic or antifreeze to me.  I take ½ teaspoon with my breakfast and it seems to do okay.  Of course I am still taking my other laxatives, Milk of Magnesia, Senekot and Soflax.  You get the picture.

The knee created some problems at home as I was in ‘pain’ when anybody even thought about moving my knee.  Note this was before I learned how to use my medication.  The PSWs who came in to shower and do bowel care became almost afraid to touch me as I can yell quite loudly. We made arrangements with the agency to send two PSWs, one to hold my leg and one to move me.  I was having trouble moving and sitting up in bed because I had so much muscle tone (spasms).  We looked at my medications and the resident physician had decreased my Baclofen (antispasmodic) after the surgery from 50 mg daily to 15 mg daily.  I couldn’t sit up and when I moved my legs my arms would spasm and tighten up and I had difficulty moving anything.  After some time and a doctors’ visit I got my Baclofen increased to 60 mg daily and I am able to sit up and move much better…….jeeez who would have thought that one drug would have that much of an affect.

Now back to the two PSWs at every visit…….after taking the Baclofen and being able to take my pain meds correctly, I could sit up by myself and move my leg around very easily. One worker does most of the work and the other assists or does other things around the house like making my bed etc. I felt  embarrassed having two people and the money that is being wasted on me but I was told that it is a safety issue and the cost to repair me  after a fall far outweighs the cost of a PSW, that’s the system I guess.

Darcy was having problems moving me around.  When I get in and out of bed she has to lift my legs in and this is more weight she can handle.  And when there was one PSW, Darcy would assist in getting me to sit up which meant she would have to assist lifting my body weight of 170 lbs or help moving my leg and she got very upset when I would say, very loudly, well ok, yell ‘NO…NO…NO…NO…PLEASE...STOP’ and I was not even on the commode yet.  Needless to say, Darcy was at her breaking point and on Wednesday, May 9th, she was having some problems and I asked her to check her blood pressure which is usually around 118/84; this time it was 173/104.  She was afraid she was having a heart attack or stroke because she was having pains in her chest on the left side and her fingers were feeling numb and tingly.  She was also afraid of what would to me if she was not here. We called a friend who came over immediately and took her to the hospital and his wife came over to look after me.  To complicate matters I was very constipated at the time and while removing the stool my hemorrhoid started to bleed. This frightened me a little bit because I am on blood thinners.  More friends came over and one went and bought some Depends as we didn’t know if I would be bleeding through the night or not.  A friend who is a nurse came over and checked my Depends before I went to sleep and there was no blood….worry ended.  Now the problem was Darcy was in the hospital and I needed another friend to sleep over night and she slept on the sofa.
Darcy was released from the hospital in the morning her pain in the chest was gone, her BP was down and the ECG was good and the blood work showed nothing. Since she has been home, we have tried to limit her lifting. Having 2 PSWs coming twice a day helps alleviate some of that. One reason for a lot of lifting was that I was told that I should not keep my leg in the same position for more than an hour. I was in and out of my chair several times a day which meant that Darcy had to lift my legs and spin me into bed several times a day which contributed to her back pain and stress. 

My knee is getting better and now it bends almost 90 degrees without any pain and it seems to have happened overnight.  On Tuesday I was at a friend’s place and my knee was bending 60-70 degrees and I couldn’t get my foot on the foot plate of the wheelchair….today, Thursday it bends almost 90 degrees and I can put almost half my foot on the foot plate…hmmmm…good progress.

In physio on Wednesday, I had acupuncture in my left leg for an additional 20 minutes.  Acupuncture takes some time to have an affect, I’m just hoping it’s a good one as I had when I was in the hospital. The other good news is I tried to ride my bicycle today but I didn’t have the courage to spin the pedal all the way around due to anticipated pain.  I spent about 20 minutes doing half pedal strokes without turning the pedals all the way around…a workout nonetheless.  After my pedaling session Darcy suggested that I put my both feet on the ground to see if my left foot would sit flat on the ground……it did. I tried to do some standup launches which means I hang onto the handlebar with one hand and try to get my butt off the saddle.  I tried several little launches which I got my butt off the saddle about two inches and then I tried the big one and I almost stood up……..yeehaw.  I tried several more and it felt really good, however I really needed my right arm in pulling and holding myself up.  I couldn’t do it without my right arm. I will be doing it many times in the future hopefully after half an hour of proper cycling.

As mentioned the lack of Baclofen causes a lot of spasms plus the sore knee didn’t’ help either and last Saturday, May 12th I was on 15mg of Baclofen and was very stiff and sore. I could not move very well and was very disappointed in myself that I missed my Karate Club’s Shai-club tournament – after the club has been sooooooooooooo supportive of me. However some friends came over and got me out of bed at about 2 and took me for a coffee.

Wow, if you’ve read this far, thanks for listening.

Saturday 12 May 2012

I Did It.


FYI 

I haven’t been writing as my meds got changed and I’m stiff and it is hard to type. Here’s the short version. Had knee surgery on May 2nd and all went well. The surgeon said the knee was a mess but he took some extra time to clean it up. I have been home since Monday May 7th

How am I feeling….the knee is sore and I am a big suck when it comes to the pain of bending it.
I am going to start physio and OT as an out patient on Monday.

Longer version to follow…..

Thanks for listening.