On August 20, 2011 -- Glen Steen was in an unfortunate cycling accident which required immediate spinal cord surgery and has left him in a quadriplegic state. Glen is a warrior and because of his determined nature and dedication to therapy, he is making gains each day. Follow Glen on his journey here in his Blog, written in his own words.


Sunday 11 August 2013

July 22 to Aug 11, 2013



July 22 to Aug 11, 2013

It was great having Meghan down for a visit for a few days. She arrived on Tuesday, July 22 and left on the 25th. Went for a ride with her on the trikes. Noticing a little glitch when I ride the trike. The headrest is now installed. It is not really a headrest as my neck actually rests on it. The problem being that when I flex the left leg it does not bend far enough so my neck comes off the headrest and ‘bangs’ back down on it with every pedal stroke. It is a…wait for it…a pain in the neck! 

Think I need the Cerna kids to break up the scar tissue in my knee like they did for Sensei Helene to increase the range. They say the range you have after a couple of months is what you end up with. I need about another 3 or 4 degrees, t’wil be a painful 3 or 4 degrees.
Getting up and walking more. Walked into the gym with Yonna and walked between all the equipment and walked out as well. Got to the pool and walked in to a standing ovation from all the ‘girls’. One of the girls said it even brought a tear to her eye…awwww!

On Thursday July 25th, I explained to Stephanie that my left arm is getting weaker. I have trouble combing my hair in the morning. It gets a little better during the day but it is still weak and can’t do things I could do 3 months ago. I was able at one time run the palm of my hand over my head…can’t do that now. Stephanie is going to let me go back to lifting on the right arm. 

Meghan left on Friday and Myah was very happy to see her big dog leave. While Ashlu is here Myah is beside me at all times. Although, when somone comes to the door Myah starts barking which gets Ashlu going and he has a very loud bark, just what we need, more barking.

Darcy came into the pool with Yonna and I on Wednesday to get trained so she can take me to the pool when Yonna is away. Darcy she is short, 5’2” and eyes of blue and we stay close to the shallow end. Darcy took me to the pool by herself on Friday. It all went very well although Darcy stays a little further away from me than Yonna does…a little scarier! We did all the same workouts and stretches just didn’t get stretched quite as far. Darcy was able to manhandle me and get me back on the lift. She can’t pick me up and throw me around like Yonna does but she gets me in the right position on the lift nonetheless. After the pool I got on the trike and did 9.9 K. As usual I tighten up and my nose plugs up. I think that if I keep moving around when my nose is plugged up it starts to clear up…at least it happened once. 

Did some more K’s on the trainer and my knee was a little sore from being on the trike. Attended Bruce and Maggie’s ‘I Do’ party on Saturday. They got married on Valentine’s Day and had the party on July 26. It was good seeing all the karate guys and especially my ‘Dirt Belt Buddy’ Monica. We were Brown Belts together and graded to Black together. She was here on vacation from New Brunswick to be here for the I Do party. Had some problems at the party. I was a little chilly, well actually got very cold. I did have long pants on but it seems I needed a blanket as well. The whole body got very numb in particular my legs and started to feel very uncomfortable. Couldn’t move very well and I had to leave early. Perhaps that was a good thing as it rained just after we left. 

Disappointed as we were just about ready to start the performances…rugby performances that is. Whitney, Monica’s sister is a rugby player in New Brunswick and she was going to perform a ‘modern’ Rugby song and I was going to do a ‘golden oldie’. I had to leave just as Whitney was about to begin.

On Sunday, we went out to meet the cyclist who were having a breakfast break at Styles Restaurant in Delhi. My back was a little sore and Darcy mentioned that I was a bit grumpy. I did do 55 minutes on the trainer when I got home. Again Darcy tells me I am overdoing it. I guess she does have to put up with me when my nose clogs up or when I need a quick trip into the chair and out into the driveway. My philosophy is that you must continue to improve which requires pushing  the limits. This means staying on the bike or trike longer and doing more mileage, walking further, increasing the weight in the gym etc. When I got the trainer in June 2012, I was doing 6 K in 30 minutes and now I am doing 12.6 K in 40 minutes. A little improvement perhaps not enough. The factor keeping me from doing more is the tone of course. What I am finding now is that the tone is the worst right after the workout and it lasts about the same regardless of how long or how hard I work out. I think I had better clarify, tone is there all the time. But after a workout it is particularly intense and that is when I need to get out of the house almost like a panic attack but not quite the same. Must learn to deal with the intense tone as it always does decrease after a while...perhaps I don’t need the trips to the garage…just gotta learn to suck it up.

The week of the 28th was different. As you have been informed I have a BM every night at around 8 o’clock. Well on Sunday night, I didn’t have one. Not a big deal you say…nobody has to go everyday. It seems I do. Missed Sunday and a bout of diarrhea in the morning after my shower. Put on Depends to go to Parkwood just in case there was an accident. Yonna and I headed off to Parkwood only to be turned back at Dorchester by an incident…no therapy. Got home, had lots of tone, didn’t feel hungry but force fed just to have something in my stomach. Then it was onto the can for almost an hour and I thought I got rid of all the bad stuff. Monday night almost a normal BM but diarrhea again in the morning and again no therapy. Once everything settled down Yonna came over for a stretch and we did some walking.  I walked out onto the patio and sat on a real chair. Can get down onto a chair but it is a little harder getting up. To stand up I must lean far forward until my butt starts lifting off the chair and then drive up with my legs. Even though everyone leans forward to stand for me it is scary when there is no-one in front of me or nothing in front of me. I feel like I am going to fall over. I got up with some assistance and walked into the house. I’d like to walk into a restaurant but I wouldn’t be able to slide the chair into the table.

Kelly got home on Wednesday at 2 AM and we all got up when she arrived, including the dog. So good to see her. It’s been almost 2 years. Her boyfriend Simon arrives on the 7th. Looking forward to that. Although I won’t see him ‘til Saturday as they are going to Niagara Falls from the airport.
Back to therapy on Thursday. First time there in a week. Stephanie did her usual stretching and then it was off walking. Did 3 very good walks with the quad cane and also with a walking stick. I sometimes have trouble with the quad cane as I don’t always put all it’s 4 feet on the floor and it’s tippy. The walking stick is longer and my hand is higher and I don’t think I tighten up as much with the walking stick.

Darcy took me to the pool…yikes. I was a little concerned with Darcy getting me on the lift both from the chair and also getting on the chair the water. Happy to report both worked well. To get off the wheelchair, I held onto Darcy’s hands and she pulls off the lift chair and sat down…piece of cake! Getting on the lift chair in the water also worked well. Darcy was able to push my butt back far enough to stay on the chair. Hmmmmm…now I just have to train Darcy in the gym..lol! Oh yes, on Saturday I walked into Karate Class with the transfer belt and Darcy helping me when I am not paying attention to what my feet are doing.

How am I Feeling?

Getting excited about the walking as it seems to be progressing. I’m thinking they may be terminating the physio at Parkwood. Just a feeling I am getting from Stephanie. She asks where I want to be with the walking, which implies there is an end point to therapy, go figure, I’ve been there for about 18 month. I’d like to be able to walk with no assistance and get around with just a cane or maybe no cane would be nice.  I do not have much endurance yet for walking. I get tired quite quickly. I can walk for about 75 m and then I need a rest. Guess I need to practice more. Not used to having no endurance.

The tonal overflow as I keep harping on is the thing to overcome. Something I’ll just have to live with. Same thing every time. Over and above the tight back and ribs, about ½ hour after a workout my nose plugs up. It is strange and lasts for a couple of hours. I can feel all the muscles in my face tightening up and slowly all the sinuses start to close up just like an allergy and the nose shuts down and that’s a pretty big thing to have my nose stop working. The most aggravating is my mouth dries out from breathing through it and I must take little sips of water every couple of minutes. The benefits of working out far outweigh the side effects…so I should shut up about it and put up with it.
Well, I just got back from Karate Class on Saturday and after class I did a big walk around the hall. Felt good but I start to catch my left toe when the leg gets tired and it was time to stop.  After class we went to Tim’s for oatmeal and coffee. Note: Wish they would have had the oatmeal when I was doing Randonneuring rides…it would have hit the spot at 3 in the morning. Darcy had to do some shopping, at the beer store. While waiting in the car, I started to feel very strange. Muscles in my face, neck, ears and skull started to go numb. My chest and trunk tightened up and I felt nauseous. This feeling lasted for about an hour. Darcy even said I looked pale when she got back in the car.
 Guess maybe I can’t ignore the tone. Another wash has just come over me and everything tightened up again. Yikes I don’t like this very much. I need to belly breath and when I’m toned it is difficult to talk. When I inhale to get air to talk all the muscles tighten up so there is no muscle to exhale...and to talk. This is the worst the tone has been…hmmm…perhaps the rushes were caffeine related from drinking one cup at 8:30 and another at 11:00. Hopefully, it was the caffeine and not the walking that got me all messed up…we’ll check that out. The doctor also upped one of my meds that may be a factor as well.

The Randonneurs are getting ready to do a 1,200 K ride and I must admit I do miss the cycling!

Thanks for listening…